News
We proudly present our new single CD "Slow Walking"!
Our single CD "Slow Walking" is a song about having to live with Hypoparathyroidism.
The income of the sales goes to our voluntary and nonprofit organisation, working to benefit those affected by Hypoparathyroidism.
A huge thank you, to those who made this record a reality:
Lyrics by Astri Marie Hansen (with HPTH).
Music by Tore Hansen (her husband).
Produced and arranged by Vegar Laurendz Pedersen.
Piano - Hans Petter Tangen.
Drums - Christian Nesheim.
Vocals - Tore Hansen.
Bass and El-guitars - Vegar L. Pedersen.
Akk-guitars - Ingvald Alvseike.
Recorded, mixed and mastered by Ingvald Alvseike & Vegar L. Pedersen in Karmøy Lydstudio ANS, Norway. www.karmoylydstudio.no
You may order the single CD in the menu to the left, under: "Order our single CD".
Please click on "les mer" to listen to the music:
Our new leaflet, 2009.
Our new leaflet is accessible in 4 languages; Norwegian, Danish, Swedish and English.
It is designed by Veronica Sande.
We would like to thank the Learning Center at Oslo University Hospitall, Ullevål, Norway, for their help and support. A further thank you to the Norwegian Directorate of Health for their financial support and to all those who helped in the translations.
A special thanks and appreciation to Professor Erik Fink Eriksen, Department of Endocrinology, Oslo University Hospital, Aker, Norway. His contribution, in editing and securing the quality of the leaflet, is irreplaceable.
You may print out the leaflet here (PDF) or use the menu to the left (at the bottom).
29 February 2008: First European Rare Disease Day!
The EURORDIS Council of National Alliances has made the First European Rare Disease day to a reality! The 29th of February was chosen because it is a rare day! The day will promote the concept of rare diseases as a public health priority. It also fits well with the current development of synergies between the European and the national levels, illustrated by the new Commission Communication on Rare Diseases, the development of national plans for rare diseases, and the development of European reference networks of centres of expertise. Awareness actions will be targeted at members of the European Parliament in Brussels. In every country, many events and activities will take place. http://www.rarediseaseday.org/
April 2007. Members of the Swedish Association of Rare Disorders.
Our Swedish HPTH department have become members of the Swedish Association of Rare Disorders. The Swedish Association of Rare Disorders is an organisation for societies organising people with rare disorders and disabilities, and their members. They are the national association for people with rare disorders in Sweden.The Swedish Association of Rare Disorders was founded on the 7th of November 1998. The basis of this national Association is to facilitate for people with rare disorders to make themselves heard and improve their situation by co-operating. www.sallsyntadiagnoser.se
Members of Eurordis.
We are now members of EURORDIS. The European Organisation for Rare Diseases. Eurordis’ mission is to build a strong pan-European community of patient organisations for people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives. Eurordis also undertakes activities in the favour of promoting scientific and clinical rare disease research and developing rare disease treatmemts and orphan drugs.
Dear guests from Iceland
Dear guests from Iceland! We would like to translate this website into the Icelandic language. For the time being we hope you enjoy our English version.
